I can remember when I first heard about the hidden disabilities Sunflower (if you don’t know about it, find out more here) – we were on holiday in Cornwall, and I read that you could get the lanyards from Morrisons and Sainsburys, so off we went to Newquay to claim our free lanyard. And then it sat in the glove box in my car for months, possibly longer. I changed cars, so the lanyard came into the house, and I told both of our children where it was in case they every needed it.

To be honest I was a little sceptical, and worried on several points. First of all, by wearing a sunflowers, was it almost marking people? Would it lead to them being bullied? Does everyone know about the sunflower and what it means? And would it make any real difference?

On the first point, I was wrong. There is no law saying wearing a sunflower is compulsory, you can take it off until you need it, and the main point of the scheme is that it is for hidden disabilities, so how can people help you if they don’t know you need help? And as you don’t have to wear it, you are unlikely to get bullied. With all the news coming from the US about ‘curing’ autism, though, I am still a little bit worried about what the future may hold, but that doesn’t impact the sunflower scheme.

Secondly, I don’t think everyone does know what the sunflower stands for, but awareness is increasing. And finally, would it make any real difference? YES!

Our eldest son used our one and only lanyard when we went on holiday 18 months ago, and said it made the airport so much easier to navigate, so he kept it and has used it a few times since.

The lightbulb moment for me came 2 weeks ago when we went to Twickenham to watch the Women’s Rugby World Cup final matches. We arrived at Twickenham train station, and it was so much busier than I had expected (there will be another blog to follow about how fantastic the day was and how amazing and emotional it felt to see women’s sport celebrated by so many), and we moved with the crowd down roads that were closed to traffic, and enjoyed the happy atmosphere. As we got closer to the stadium, there was a bit of a bottle neck, with people having to move to the pavements as the road was barriered off. As the crowd got bigger, we all felt uneasy. We noticed that the police and security were letting people in wheelchairs or crutches through, and then we saw someone with a sunflower lanyard going through. My daughter in law had brought the lanyard, but neither of my sons would wear it. As there are 4 out of our party of 5 with hidden disabilities, it seemed ridiculous that they wouldn’t wear it, so I took it, wore it and we all got through the barrier and avoided the slow moving crowd. It was the same going back to the station after the match. We avoided some of the crowds by wearing the lanyard.

In our family of 5 who went to Twickenham, between us there are 3 autistic people, 3 with ADHD, 4 with anxiety, one with OCD and none of these are visible to people watching us. The crowd, going through security, waiting for the train and more are all potential triggers. We all got to enjoy an amazing day out with minimal stress and an avoidance of stress points.

Last week I ordered more lanyards, wrist bands, bracelets and pin badges. If you look on the website, they have a list of hidden or non-visible disabilities (link here), and the list is growing as they want to be as inclusive as possible. I went to London for a meeting on Thursday, and I wore the bracelet. As it happens, there were no triggers, it was a stress free visit, and I didn’t ‘need’ it, but it was a comfort to know it was there, and it actually made a good fidget toy in the meeting.

If you choose to wear the sunflower, you don’t have to wear it all the time, but you can if you want to. You can choose to wear whatever feels most comfortable to you – the ribbon bracelet is the one for me – but you don’t have to wear them if you don’t want to, and I think that’s the joy of the scheme. It’s optional, you can use it as much or a little as you want, but it really can make a difference.